Blogs

Day 638 - What A Difference!

What a difference a whole year can make!

Day 636: Carnival Time

Everett thoroughly enjoyed his first carnival! He couldn't get enough of the lights, sounds and crowd. It's truly remarkable to be able to expose our little guy to fun new experiences!

Day 634 - Happy Father's Day!

It was a very Happy Father's Day for a very proud daddy!

Day 631 - The Pediatric Movement Center

Everett's immune function is well enough to begin participating in therapies outside of the home and we are so excited to have found the Pediatric Movement Center

Day 615 - First Dentist Visit

Everett's first visit to the dentist! Everyone at Mt.

Day 596 - Ramped Up!

More amazing news to share!
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In December, we mentioned that several members of the Mount Zion United Methodist Church in Myersville, MD, had generously donated their time to help us move landscaping to prepare for the installation of the wheelchair accessible ramp.

Day 592 - Worshiping Together

Our whole family was able to attend Mass together again for the first time in 22 months!

Days 587 & 588 - Drumroll, Please...

Everett's follow up trip to Duke was a complete whirlwind! It was truly wonderful to be able to see so many doctors, nurses, and staff who genuinely love our son and were amazed at Everett's physical transformation. Over the past 6 months, he's grown 6cm and lost all "the fluffiness" so he no longer looks like a marshmallow man...barely anyone even recognized him!

Day 580 - Strong and Spunky

Everett powered through multiple therapy sessions today. We are thrilled our little guy is getting to be so strong and spunky!

Next week, we will return to Duke for a follow-up. This visit will examine lung and heart function as well as endocrine and neuro-ophthalmology appts. We are especially excited to meet with his transplant team to discuss immune function, the status of Everett's red blood cell bursting issues, and next steps. 

Day 575 - All By Himself!

Over the past few months, we have noticed our little warrior gain so many new and amazing skills! After working specifically on kneeling during his PT session this afternoon, he was observed climbing up onto his therapy bench and playing while kneeling all by himself. We are so thankful for each and every small miracle!






 
 
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