Blogs

Day 341 - Sleeping So Well!

Since his arrival home, Everett's sleep patterns have dramatically improved! He used to rely heavily on medication and never lasted more than 6 hours without waking.

Now, he sleeps at least 10 hours with half the medication dose (which we are still weaning even more), and we have to wake our little sleepy head up in the morning!

Day 340 - Sweet Prince

Everett enjoyed his first (of probably very many) tea party with Snow White and Sleeping Beauty. He loved when the Big Sisters kept calling him their "Sweet Prince."

Day 339 - Change in Mood

The transformation in Everett's mood since he returned home has been remarkable. It's so wonderful to see him happy, smiley, and laughing all the time again!

Day 338 - Grandma Visits

Grandma's turn to come and play for the day!

Day 337 - Nana Visits

Nana was finally feeling well enough to come over and spend the day with the Budsky Boy!

Day 336 - Comfy at Sinai

Everett received his Ecluzimab in style today at the Children's Hospital at Sinai. We are hopeful that Everett won't have to use them often, but the rooms are certainly comfortable.

Day 335 - Storytime With Three

Storytime before bed is a lot more complicated with three kiddos to please, but we're so thankful to all be together again and wouldn't want it any other way!

Day 334 - Lucky Little Guy

Everett had a fabulous first visit to Sinai Hospital! We love his medical team at Duke University Hospital so much that transferring Everett has been a great source of stress for our family. But everyone we have met at Sinai is lovely, they have a great relationship with our team at Duke (and use the same protocols), and the facilities are absolutely gorgeous.

Day 333 - Sleeping Sweet

Since his return home, Everett has been playing hard and (more importantly) sleeping very well!

Day 332 - Loving Every Minute

The excitement of their little brother being home hasn't worn off yet...these siblings are loving every minute.






 
 
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