Blogs

Day 347 - A Holiday Apart

Everett was thrilled to FaceTime with his Big Sisters today! Since it's a holiday weekend, unfortunately, we have to wait until Tuesday for them to be checked by their pediatrician to make sure they are healthy to come home. Thank you so much for your prayers and support!

Day 346 - Window Visit

The Big Sisters dropped by to say "hello!" They were cheering Everett's name like he was a rock star, and he thought it was hilarious.

Da 345 - Chocolate Face

More chocolate pudding ended up on his face than in his mouth. Without the Big Sisters here to serve as positive role models, Everett hasn't wanted to eat much. It's amazing how much this little guy loves and misses his big sisters right now even though throughout the past year he has gone months without seeing them. We are incredibly grateful for their strong bond!

Day 344 - Missing His Playmates

This little brother is pretty unhappy that the Big Sisters can't return home yet...Aurore was diagnosed with walking pneumonia today. Thankfully, Everett is still feeling healthy; he's just lonely without his favorite playmates.

Day 343 - Great Sinai Visit

Great clinic visit today at Sinai filled with lots of smiles and giggles! Labs continue to remain stable, and we are going to be able to try weaning some medications even more. We even had a chance to catch up with Dr.Prasad (Primary Dr at Duke) via conference call and brag about how much Everett is enjoying being home!

Day 342 - Immune System Challenges

The most challenging part of being home while Everett still has a poor immune system is the increased risk of infection while living with a 4 and 6 year old. Despite the fact that our girls wash their hands at least 30 times a day and take a full shower every time they enter the home from being outside, they are still kids.

Day 341 - Sleeping So Well!

Since his arrival home, Everett's sleep patterns have dramatically improved! He used to rely heavily on medication and never lasted more than 6 hours without waking.

Now, he sleeps at least 10 hours with half the medication dose (which we are still weaning even more), and we have to wake our little sleepy head up in the morning!

Day 340 - Sweet Prince

Everett enjoyed his first (of probably very many) tea party with Snow White and Sleeping Beauty. He loved when the Big Sisters kept calling him their "Sweet Prince."

Day 339 - Change in Mood

The transformation in Everett's mood since he returned home has been remarkable. It's so wonderful to see him happy, smiley, and laughing all the time again!

Day 338 - Grandma Visits

Grandma's turn to come and play for the day!






 
 
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